SUDEP Aware is a Canadian charity, founded in 2008 and run by dedicated volunteers based in Toronto.

ur mission is to promote knowledge and understanding of Sudden, Unexplained Death in Epilepsy (SUDEP) through:
    of professional and lay communities to enhance SUDEP awareness and ensure early, accurate identification of SUDEP deaths.

    to understand the causes, risk factors and possible prevention strategies for SUDEP.

    for those affected by SUDEP, via collaboration with support agencies, other families and health care professionals.

The co-founders are:

Elizabeth J Donner MD FRCPC

  • Pediatric Neurologist at the Hospital for Sick Children in Toronto
  • Associate Professor in the Faculty of Medicine at University of Toronto
  • President of the Canadian Pediatric Epilepsy Network (CPEN)
  • Secretary-Treasurer of the Canadian League Against Epilepsy (CLAE)
  • Member of the Partners Against Mortality in Epilepsy (PAME) Steering Committee
  • Reported on the largest cohort of paediatric SUDEP cases whilst investigating SUDEP in children in Ontario, in 2001

Olivia Mullin (1975-2007)
Olivia Mullin (1975-2007)

Tamzin C Jeffs MSc2 [Forensic Science/Information Security]       

  • Lost her sister, Olivia Mullin, to SUDEP in 2007
  • Member of the SUDEP Coalition
  • Member of the Advisory Committee of the North American SUDEP Registry
  • Member of the Epilepsy Foundation (EF) SUDEP Education Work Group
  • Member of the Partners Against Mortality in Epilepsy (PAME) Planning Committee